Will the Cabinet Minister provide an update on the publication of the NHS Wales primary care pathway for Ehlers-Danlos syndromes and hypermobility spectrum disorders, and explain why it has not yet been published?
Answered by Cabinet Minister for Health and Care | Answered on 06/07/2026
I have previously answered this question in WQ98581, WQ98669, WQ98800 and WQ98978.
As set out in those responses, the EDS and HSD Community Health Pathway has been developed but has not yet secured the full clinical agreement required through national governance arrangements. Work is ongoing to resolve outstanding issues, and I am unable to confirm a publication date at this stage.