What steps is the Welsh Government taking to ensure that people with neurological conditions such as Huntington's disease are supported by a healthcare professional who acts as a single point of contact to coordinate care, further to the NICE guidelines on rehabilitation for chronic neurological disorders published 15 October 2025?
The Welsh Government wants everyone living with a neurological condition to have equitable access to safe and high-quality services.
Health boards are expected to use the Quality Statement for Neurological Conditions to underpin the planning and delivery of high-quality services in line with clinical standards and guidelines, including those from the National Institute for Health and Care Excellence (NICE). They are supported to do this by NHS Performance and Improvement and the National Strategic Clinical Network for Neurological Conditions (NSCNNC).
The NSCNNC has identified neurorehabilitation as a key priority within its workplan and is working with health boards to map neurological services and workforce capacity across Wales.
An all-Wales Community of Practice (CoP) for community neurorehabilitation services has been established and examined NICE guideline on Rehabilitation for chronic neurological conditions including acquired brain injury (NG252), with particular attention on access and navigation of services. This will inform further work going forward.
We are committed to ensuring the NICE guidelines are implemented and that services are available and continue to develop to meet the needs of people with neurological conditions, including those living with Huntingdon’s disease, and their families.