Will the Minister provide an update on the work being done to ensure that patients with rare disease and their families get access to suitable and timely mental health support?
Following the publication of the UK Rare Disease Framework in January 2021, the Wales Rare Disease Implementation Group (RDIG) developed a Welsh Rare Disease Action Plan which was published on 16 June 2022.
Rare disease patients and their families can face a lifetime of challenge and complex care. Living with a rare disease can have a huge impact on an individual’s education, financial stability, mobility, and mental health.
We expect people with a rare disease to be able to access psychological support according to their level of need and will continue to work with the NHS to support people to manage their condition well. The Welsh Rare Disease Action Plan requires commitments to improve mental health planning and service provision for those affected by rare conditions.
The RDIG, in conjunction with the Welsh Health Specialised Services Committee (WHSCC), health boards and other partner organisations, will be responsible for the prioritisation, delivery and oversight of the Plan.
As part of our Together for Mental Health Delivery Plan, we have also increased funding to improve access to and the quality and range of psychological therapies.