WQ85042 (e) Tabled on 25/04/2022

What percentage of a) children and b) adults diagnosed with Cystic Fibrosis in Wales saw a psychosocial professional at their annual review in the last 12 months, as set out in the NHS service specifications for Cystic Fibrosis care?

Answered by Minister for Health and Social Services | Answered on 03/05/2022

The Welsh Health Specialised Services Committee (WHSSC) is responsible for commissioning cystic fibrosis (CF) care in Wales, with Cardiff and Vale University Health Board providing a service for patients in mid and south Wales. Information from WHSSC for the service provided by Cardiff and Vale University Health Board shows:

  • 267 adult patients had an annual assessment in 2021, of those, 43% had a psychology review at the same time and 95% also had a social work review. There is no data on the number of patients who declined psychological support.
  • For children there was no psychologist service for 11 months, owing to the time required to advertise and appoint, so only 9% (16) of all paediatric Cystic Fibrosis patients had a psychology review at annual assessment in 2021.

Cystic fibrosis patients in north Wales access services in England. Equivalent data is not available for patients treated in English centres.