OPIN-2022-0310 Wales Rare Diseases Action Plan 2022-26 (e) Tabled on 25/10/2022

This Senedd:
1. Welcomes the publication of the Wales Rare Diseases Action Plan 2022-26, aimed at addressing care inequalities and improving the lives of people living with rare diseases and their families.
2. Recognises that health boards must reflect the plan’s priorities when developing services and believes attention should be given to multi-disciplinary care co-coordination and the transition from paediatric to adult services, creating equitable, consistent, all-Wales care solutions.
3. Whilst being held to account itself for the delivery of plan, calls on Welsh Government, along with the Rare Diseases Implementation Group, to ensure health boards' implementation of the plan is monitored effectively.